Datasets

Our registries are built from partnerships with community specialty practices across the U.S., capturing longitudinal clinical depth from routine care not reflected in claims or academic datasets.

Our registries are built from partnerships with community specialty practices across the U.S., capturing longitudinal clinical depth from routine care not reflected in claims or academic datasets.

Explore our Database

Datasets are delivered analysis-ready in OMOP CDM format, compatible with your existing analytics tools and environment, with variable-level traceability back to source data.

Datasets are delivered analysis-ready in OMOP CDM format, compatible with your existing analytics tools and environment, with variable-level traceability back to source data.

Therapeutic Areas

All

Metabolic

Neurology

Immunology

Ophthalmology

Renal

Respiratory

Asthma

Respiratory

Key Variables

Structured:

  • FEV1, FEV1/FVC ratio

  • Eosinophil count, IgE & FeNO

  • Oral corticosteroid bursts

  • ED visits & hospitalisations

  • Biologic agent & start date

  • ICS/LABA & LAMA regimen

  • Comorbidities

Abstracted by AI:

  • Asthma severity classification

  • Allergy test results

  • Smoking status & pack-years

Insights
  • T2 vs non-T2 biologic response

  • Biologic switching patterns & drivers

  • Early biologic impact on OCS dependence

  • Exacerbation risk by phenotype

Chronic Kidney Disease

Renal

Key Variables

Structured:

  • CKD stage (1–5 / ESKD)

  • eGFR & eGFR slope

  • UACR & UPCR

  • SGLT2 inhibitor use

  • RAAS agent use

  • MRA use

  • Immunosuppressive therapy

  • Comorbidities

Abstracted by AI:

  • Glomerular disease subtype

  • Biopsy findings (chronicity, % crescents)

Insights
  • SGLT2 & finerenone real-world eGFR outcomes

  • GN subtype progression & treatment response

  • Pathways to dialysis & transplant

  • Proteinuria reduction by therapy class

Diabetic Retinopathy

Ophtalmology

Key Variables

Structured:

  • DR severity stage

  • DME status

  • Visual acuity

  • CST & macular volume

  • Anti-VEGF agent & injection date

  • Systemic diabetes medications

  • Comorbidities

Abstracted by AI:

  • IRF, SRF, CME & hyperreflective foci

  • Ellipsoid zone integrity

  • Fibrosis & macular scarring

  • Neovascularization (NVD/NVE)

  • Foveal avascular zone size

Insights
  • NPDR-to-PDR progression predictors

  • Anti-VEGF response & treatment intervals

  • Systemic disease control & visual outcomes

  • DME development & resolution patterns

Alzheimer's Disease

Neurology

Key Variables

Structured:

  • CSF & blood biomarkers (Aβ42, tau, p-tau, NfL)

  • APOE genotype

  • Anti-amyloid therapy & start date

  • Cholinesterase inhibitors & memantine

  • Comorbidities

Abstracted by AI:

  • MMSE, MoCA, ADAS-Cog

  • CDR & FAST staging

  • Neuropsychiatric symptom scores (NPI)

  • Disease stage & severity

  • ARIA incidence

  • Amyloid & tau PET findings

  • MRI findings

Insights
  • Cognitive trajectories by biomarker profile

  • Real-world ARIA rates & management

  • Anti-amyloid therapy persistence & discontinuation

  • Early vs late treatment initiation outcomes

IBD

Immunology

Key Variables

Structured:

  • Subtype

  • Disease behavior

  • Biologic use & start date

  • JAK inhibitor use

  • Immunomodulator use

  • Corticosteroid use

  • CRP, ESR, fecal calprotectin

  • Surgical procedure type & date

  • Comorbidities

Abstracted by AI:

  • Mayo Endoscopic Score

  • SES-CD score

  • Harvey-Bradshaw Index / CDAI

  • Disease location & extent

  • Stricture, fistula & abscess presence

Insights
  • Biologic & JAK inhibitor sequencing patterns

  • Drug monitoring & dose optimisation

  • Disease behaviour progression & surgery risk

  • Endoscopic vs clinical remission rates

COPD

Respiratory

Key Variables

Structured:

  • FEV1, FEV1/FVC ratio

  • Eosinophil count

  • Oral corticosteroid bursts

  • Inhaled therapy regimen

  • ED visits & hospitalisations

  • Biologic agent & start date

  • Comorbidities

Abstracted by AI:

  • GOLD classification

  • Emphysema distribution & bronchiectasis

  • Smoking status & pack-years

Insights
  • Exacerbation risk by GOLD stage & phenotype

  • Eosinophil-guided biologic response

  • Triple therapy adoption & outcomes

  • OCS dependence & cumulative burden

Age-Related Macular Degeneration

Ophthalmology

Key Variables

Structured:

  • AMD subtype

  • Visual acuity

  • CST & macular volume

  • Anti-VEGF agent & injection date

  • Comorbidities

Abstracted by AI:

  • IRF, SRF, PED & SHRM

  • Ellipsoid zone integrity

  • Geographic atrophy extent

  • Fibrosis & macular scarring

  • CNV presence & type

  • Drusen & pigmentary changes

Insights
  • Predictors of dry-to-wet conversion

  • Anti-VEGF treatment intervals & switching

  • GA progression by subtype & location

  • Fibrosis & vision loss trajectories

Multiple Sclerosis

Neurology

Key Variables

Structured:

  • JCV antibody results

  • Infection events

  • Lymphocyte counts & safety labs

  • Encounter frequency & visit cadence

  • Comorbidities

Abstracted by AI:

  • eEDSS

  • Relapse events

  • MRI results & progression

  • DMT agent, initiation & discontinuation reason

  • DMT prescription date

  • Infusion dates

  • Concomitant medications

  • Patient-reported symptoms

Insights
  • DMT switching patterns & outcomes

  • High- vs moderate-efficacy therapy sequences

  • Relapse frequency & disability progression

  • Real-world DMT discontinuation & persistence

MASH

Metabolic

Key Variables

Structured:

  • ALT, AST, GGT, bilirubin

  • FIB-4, APRI

  • HbA1c, fasting glucose

  • Lipid panel

  • BMI & weight

  • GLP-1 agonist use

  • SGLT2 inhibitor use

  • Comorbidities

Abstracted by AI:

  • Fibrosis stage

  • Steatosis severity

  • NAS score

  • FibroScan (kPa, CAP score)

  • MRI-PDFF

  • Ascites & signs of cirrhosis

Insights
  • Fibrosis progression predictors

  • GLP-1 & SGLT2 real-world response

  • Metabolic comorbidity burden & outcomes

  • Treatment initiation timing & patterns

Asthma

Respiratory

Key Variables

Structured:

  • FEV1, FEV1/FVC ratio

  • Eosinophil count, IgE & FeNO

  • Oral corticosteroid bursts

  • ED visits & hospitalisations

  • Biologic agent & start date

  • ICS/LABA & LAMA regimen

  • Comorbidities

Abstracted by AI:

  • Asthma severity classification

  • Allergy test results

  • Smoking status & pack-years

Insights
  • T2 vs non-T2 biologic response

  • Biologic switching patterns & drivers

  • Early biologic impact on OCS dependence

  • Exacerbation risk by phenotype

COPD

Respiratory

Key Variables

Structured:

  • FEV1, FEV1/FVC ratio

  • Eosinophil count

  • Oral corticosteroid bursts

  • Inhaled therapy regimen

  • ED visits & hospitalisations

  • Biologic agent & start date

  • Comorbidities

Abstracted by AI:

  • GOLD classification

  • Emphysema distribution & bronchiectasis

  • Smoking status & pack-years

Insights
  • Exacerbation risk by GOLD stage & phenotype

  • Eosinophil-guided biologic response

  • Triple therapy adoption & outcomes

  • OCS dependence & cumulative burden

Chronic Kidney Disease

Renal

Key Variables

Structured:

  • CKD stage (1–5 / ESKD)

  • eGFR & eGFR slope

  • UACR & UPCR

  • SGLT2 inhibitor use

  • RAAS agent use

  • MRA use

  • Immunosuppressive therapy

  • Comorbidities

Abstracted by AI:

  • Glomerular disease subtype

  • Biopsy findings (chronicity, % crescents)

Insights
  • SGLT2 & finerenone real-world eGFR outcomes

  • GN subtype progression & treatment response

  • Pathways to dialysis & transplant

  • Proteinuria reduction by therapy class

Age-Related Macular Degeneration

Ophthalmology

Key Variables

Structured:

  • AMD subtype

  • Visual acuity

  • CST & macular volume

  • Anti-VEGF agent & injection date

  • Comorbidities

Abstracted by AI:

  • IRF, SRF, PED & SHRM

  • Ellipsoid zone integrity

  • Geographic atrophy extent

  • Fibrosis & macular scarring

  • CNV presence & type

  • Drusen & pigmentary changes

Insights
  • Predictors of dry-to-wet conversion

  • Anti-VEGF treatment intervals & switching

  • GA progression by subtype & location

  • Fibrosis & vision loss trajectories

Diabetic Retinopathy

Ophtalmology

Key Variables

Structured:

  • DR severity stage

  • DME status

  • Visual acuity

  • CST & macular volume

  • Anti-VEGF agent & injection date

  • Systemic diabetes medications

  • Comorbidities

Abstracted by AI:

  • IRF, SRF, CME & hyperreflective foci

  • Ellipsoid zone integrity

  • Fibrosis & macular scarring

  • Neovascularization (NVD/NVE)

  • Foveal avascular zone size

Insights
  • NPDR-to-PDR progression predictors

  • Anti-VEGF response & treatment intervals

  • Systemic disease control & visual outcomes

  • DME development & resolution patterns

Multiple Sclerosis

Neurology

Key Variables

Structured:

  • JCV antibody results

  • Infection events

  • Lymphocyte counts & safety labs

  • Encounter frequency & visit cadence

  • Comorbidities

Abstracted by AI:

  • eEDSS

  • Relapse events

  • MRI results & progression

  • DMT agent, initiation & discontinuation reason

  • DMT prescription date

  • Infusion dates

  • Concomitant medications

  • Patient-reported symptoms

Insights
  • DMT switching patterns & outcomes

  • High- vs moderate-efficacy therapy sequences

  • Relapse frequency & disability progression

  • Real-world DMT discontinuation & persistence

Alzheimer's Disease

Neurology

Key Variables

Structured:

  • CSF & blood biomarkers (Aβ42, tau, p-tau, NfL)

  • APOE genotype

  • Anti-amyloid therapy & start date

  • Cholinesterase inhibitors & memantine

  • Comorbidities

Abstracted by AI:

  • MMSE, MoCA, ADAS-Cog

  • CDR & FAST staging

  • Neuropsychiatric symptom scores (NPI)

  • Disease stage & severity

  • ARIA incidence

  • Amyloid & tau PET findings

  • MRI findings

Insights
  • Cognitive trajectories by biomarker profile

  • Real-world ARIA rates & management

  • Anti-amyloid therapy persistence & discontinuation

  • Early vs late treatment initiation outcomes

MASH

Metabolic

Key Variables

Structured:

  • ALT, AST, GGT, bilirubin

  • FIB-4, APRI

  • HbA1c, fasting glucose

  • Lipid panel

  • BMI & weight

  • GLP-1 agonist use

  • SGLT2 inhibitor use

  • Comorbidities

Abstracted by AI:

  • Fibrosis stage

  • Steatosis severity

  • NAS score

  • FibroScan (kPa, CAP score)

  • MRI-PDFF

  • Ascites & signs of cirrhosis

Insights
  • Fibrosis progression predictors

  • GLP-1 & SGLT2 real-world response

  • Metabolic comorbidity burden & outcomes

  • Treatment initiation timing & patterns

IBD

Immunology

Key Variables

Structured:

  • Subtype

  • Disease behavior

  • Biologic use & start date

  • JAK inhibitor use

  • Immunomodulator use

  • Corticosteroid use

  • CRP, ESR, fecal calprotectin

  • Surgical procedure type & date

  • Comorbidities

Abstracted by AI:

  • Mayo Endoscopic Score

  • SES-CD score

  • Harvey-Bradshaw Index / CDAI

  • Disease location & extent

  • Stricture, fistula & abscess presence

Insights
  • Biologic & JAK inhibitor sequencing patterns

  • Drug monitoring & dose optimisation

  • Disease behaviour progression & surgery risk

  • Endoscopic vs clinical remission rates

Asthma

Respiratory

Key Variables

Structured:

  • FEV1, FEV1/FVC ratio

  • Eosinophil count, IgE & FeNO

  • Oral corticosteroid bursts

  • ED visits & hospitalisations

  • Biologic agent & start date

  • ICS/LABA & LAMA regimen

  • Comorbidities

Abstracted by AI:

  • Asthma severity classification

  • Allergy test results

  • Smoking status & pack-years

Insights
  • T2 vs non-T2 biologic response

  • Biologic switching patterns & drivers

  • Early biologic impact on OCS dependence

  • Exacerbation risk by phenotype

COPD

Respiratory

Key Variables

Structured:

  • FEV1, FEV1/FVC ratio

  • Eosinophil count

  • Oral corticosteroid bursts

  • Inhaled therapy regimen

  • ED visits & hospitalisations

  • Biologic agent & start date

  • Comorbidities

Abstracted by AI:

  • GOLD classification

  • Emphysema distribution & bronchiectasis

  • Smoking status & pack-years

Insights
  • Exacerbation risk by GOLD stage & phenotype

  • Eosinophil-guided biologic response

  • Triple therapy adoption & outcomes

  • OCS dependence & cumulative burden

Chronic Kidney Disease

Renal

Key Variables

Structured:

  • CKD stage (1–5 / ESKD)

  • eGFR & eGFR slope

  • UACR & UPCR

  • SGLT2 inhibitor use

  • RAAS agent use

  • MRA use

  • Immunosuppressive therapy

  • Comorbidities

Abstracted by AI:

  • Glomerular disease subtype

  • Biopsy findings (chronicity, % crescents)

Insights
  • SGLT2 & finerenone real-world eGFR outcomes

  • GN subtype progression & treatment response

  • Pathways to dialysis & transplant

  • Proteinuria reduction by therapy class

Age-Related Macular Degeneration

Ophthalmology

Key Variables

Structured:

  • AMD subtype

  • Visual acuity

  • CST & macular volume

  • Anti-VEGF agent & injection date

  • Comorbidities

Abstracted by AI:

  • IRF, SRF, PED & SHRM

  • Ellipsoid zone integrity

  • Geographic atrophy extent

  • Fibrosis & macular scarring

  • CNV presence & type

  • Drusen & pigmentary changes

Insights
  • Predictors of dry-to-wet conversion

  • Anti-VEGF treatment intervals & switching

  • GA progression by subtype & location

  • Fibrosis & vision loss trajectories

Diabetic Retinopathy

Ophtalmology

Key Variables

Structured:

  • DR severity stage

  • DME status

  • Visual acuity

  • CST & macular volume

  • Anti-VEGF agent & injection date

  • Systemic diabetes medications

  • Comorbidities

Abstracted by AI:

  • IRF, SRF, CME & hyperreflective foci

  • Ellipsoid zone integrity

  • Fibrosis & macular scarring

  • Neovascularization (NVD/NVE)

  • Foveal avascular zone size

Insights
  • NPDR-to-PDR progression predictors

  • Anti-VEGF response & treatment intervals

  • Systemic disease control & visual outcomes

  • DME development & resolution patterns

Multiple Sclerosis

Neurology

Key Variables

Structured:

  • JCV antibody results

  • Infection events

  • Lymphocyte counts & safety labs

  • Encounter frequency & visit cadence

  • Comorbidities

Abstracted by AI:

  • eEDSS

  • Relapse events

  • MRI results & progression

  • DMT agent, initiation & discontinuation reason

  • DMT prescription date

  • Infusion dates

  • Concomitant medications

  • Patient-reported symptoms

Insights
  • DMT switching patterns & outcomes

  • High- vs moderate-efficacy therapy sequences

  • Relapse frequency & disability progression

  • Real-world DMT discontinuation & persistence

Alzheimer's Disease

Neurology

Key Variables

Structured:

  • CSF & blood biomarkers (Aβ42, tau, p-tau, NfL)

  • APOE genotype

  • Anti-amyloid therapy & start date

  • Cholinesterase inhibitors & memantine

  • Comorbidities

Abstracted by AI:

  • MMSE, MoCA, ADAS-Cog

  • CDR & FAST staging

  • Neuropsychiatric symptom scores (NPI)

  • Disease stage & severity

  • ARIA incidence

  • Amyloid & tau PET findings

  • MRI findings

Insights
  • Cognitive trajectories by biomarker profile

  • Real-world ARIA rates & management

  • Anti-amyloid therapy persistence & discontinuation

  • Early vs late treatment initiation outcomes

MASH

Metabolic

Key Variables

Structured:

  • ALT, AST, GGT, bilirubin

  • FIB-4, APRI

  • HbA1c, fasting glucose

  • Lipid panel

  • BMI & weight

  • GLP-1 agonist use

  • SGLT2 inhibitor use

  • Comorbidities

Abstracted by AI:

  • Fibrosis stage

  • Steatosis severity

  • NAS score

  • FibroScan (kPa, CAP score)

  • MRI-PDFF

  • Ascites & signs of cirrhosis

Insights
  • Fibrosis progression predictors

  • GLP-1 & SGLT2 real-world response

  • Metabolic comorbidity burden & outcomes

  • Treatment initiation timing & patterns

IBD

Immunology

Key Variables

Structured:

  • Subtype

  • Disease behavior

  • Biologic use & start date

  • JAK inhibitor use

  • Immunomodulator use

  • Corticosteroid use

  • CRP, ESR, fecal calprotectin

  • Surgical procedure type & date

  • Comorbidities

Abstracted by AI:

  • Mayo Endoscopic Score

  • SES-CD score

  • Harvey-Bradshaw Index / CDAI

  • Disease location & extent

  • Stricture, fistula & abscess presence

Insights
  • Biologic & JAK inhibitor sequencing patterns

  • Drug monitoring & dose optimisation

  • Disease behaviour progression & surgery risk

  • Endoscopic vs clinical remission rates

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